Useful Contacts

Child & Adolescent Mental Health

The Child and Adolescent Mental Health (CAMHS) service provide a service to children and young people aged 0-18yrs, and their families, who are experiencing emotional health and wellbeing difficulties. The community mental health clinic offers support, consultation and training to children’s services and provides primary and specialist mental health services in the community and to inpatient treatment services as required.

Email: iownt.spcamhs@nhs.net


Healthwatch – Isle of Wight

Are an independent champion for people who use health and social care services.  Their purpose is to understand the needs, experience and concerns of people who use health and social care services and to speak out on their behalf.  Find out more here.


KIDS    Special Educational Needs and Disability (SEND) Mediation and Disagreement Resolution Service. 

Their service is free of charge for families and is for children and young people with SEND (or who may have SEND) age 0-25.  You can find out more about their service here.


 ACE Education

Provides independent advice for parents/carers of children aged 5-16 in state schools in England. We aim to help parents and carers understand an increasingly complex education system so that they can help their children to achieve the best possible outcomes.

Phoneline: 0300 0115 142 – email: enquiries@ace-ed.org.uk – www.ace-ed.org.uk


IPSEA

IPSEA is a registered charity providing free and independent legally based advice for parents whose children have SEN / disability. IPSEA advises families whose children have all types of SEN / disability, including behavioural problems, communication difficulties, learning disabilities and autism. IPSEA’s legally based advice gives parents the confidence to exercise their rights and provide lots of information about SEND Law and case law.

Website:https://www.ipsea.org.uk


Coram Legal Centre

Coram Children’s Legal Centre (CCLC) specialises in law and policy affecting children and young people. CCLC provides free legal information, advice and representation to children, young people, their families, carers and professionals, as well as international consultancy on child law and children’s rights. A staff of lawyers and professionals with experience in child law and funded by grants from central government and charitable trusts, help thousands of children, parents/carers every year.

Website: http://www.coram.org.uk


National Autistic Society

The leading UK charity for people with autism (including Asperger syndrome) and their families. They provide information, support and pioneering services.

Website:www.autism.org.uk

National Autistic Society – Parent to Parent Service

For information of this service click here


SEN Jungle

Special Needs Jungle is a non-profit organisation run by parents which provides support and information about all aspects of Special Educational Needs and disability in the UK.

The site is a great source of information and support for parents and carers – in particular for issues around EHC planning and SEND reforms in general. Special Needs Jungle also provide face-to-face training for parent groups, charities and professionals.

Website: www.specialneedsjungle.com


Down’s Syndrome Association

The aim of the DSA is to help people with Down’s syndrome to live full and rewarding lives.

email: info@downs-syndrome.org.uk

Website: www.downs-syndrome.org.uk

Tel: 0333 1212 300 Monday to Friday 10am – 4pm


CONTACT A FAMILY

Supports families with disabled children across the UK, providing up to date medical information on over 400 health conditions and disabilities, including rare conditions.

email: helpline@cafamily.org.uk

website: www.cafamily.org.uk 

Tel: 0808 808 3555 -Monday to Friday 9:30am – 5pm


NATIONAL DEAF CHILDREN’S SOCIETY

The National Deaf Children’s Society is the leading charity dedicated to creating a world without barriers for deaf children and young people.

email: helpline@ndcs.org.uk

website: www.ndcs.org.uk

Tel: 0800 800 8880 Monday – Thursday 9:30am -9:30pm and Friday 9:30am – 5pm


SENSE FOR EVERYONE WHO IS DEAFBLIND

Sense is a national charity supporting and campaigning for people who are deafblind and those with sensory impairments.

Email: info@sense.org.uk

Website: https://www.sense.org.uk

Tel: 0300 330 9250


COUNCIL FOR DISABLED CHILDREN

The Council for Disabled Children are an umbrella body for the disabled children’s sector bringing together professionals, practitioners and policy-makers.  They work collaboratively, from policy into practice, to ensure the best outcomes for children and young people.

Email: cdc@ncb.org.uk

Website: councilfordisabledchildren.org.uk

Tel: 020 7843 1900


SOS SEN

They offer a free, friendly, independent and confidential telephone helpline for parents and others looking for information and advice on Special Educational Needs (SEN).

We concentrate on helping people to find their way through the legal and procedural maze which is so daunting to so many who try to obtain satisfactory provision for a child’s special needs.

Website: www.sossen.org.uk

Tel: 020 8538 3731 – Monday to Friday – 09:30am to 12:30pm and 2:00pm to 5:00pm and a Wednesday Evening Helpline 8:30pm to 10:30pm.


AIM (Autism Inclusion Matters) Isle of Wight

AIM is an  autistic-led charity, organised, run and supported by autistic adults.  They hold groups and activities for autistic adults and young people and also run a sensory library.
Anyone who is autistic, going through the assessment process or thinking about getting a diagnosis, can access their services.  Find out more at AIM